January 26, 2023

Contact: Kevin Scorsone | NCODA Legislative & Policy Liaison
Phone: (919) 903-2057

Earlier this year, NCODA and the Patient Access Network (PAN) Foundation co-authored a letter to the United States House of Representatives focused on co-pay accumulator reform through the HELP Copays Act (H.R. 5801). PAN and NCODA want to thank everyone for the support we received on this initiative. This was a considerable undertaking for our organizations, and our comprehensive outreach to provider groups across the nation took much time. In the end, we secured over 50 signatures for our joint letter.

See below for a list of some of the  organizations that signed our letter:

  • American Society of Clinical Oncology
  • Association of Community Cancer Centers
  • National Association of Specialty Pharmacy
  • Oncology Nurses Society
  • American Society of Hematology
  • National Hispanic Medical Association
  • National Black Nurses Association
  • American Association of Nurse Practitioners
  • ADAP Association
  • Coalition of State Rheumatology Associations
  • American Oncology Network
  • Infusion Access Foundation
  • National Infusion Center Association
  • Rheumatology Nurses Society
  • Association of Women in Rheumatology
  • Hematology Oncology Pharmacist Association
  • American Association for the Study of Liver Disease
  • Global Liver Institute
  • Community Access National Network
  • Association of Clinicians for the Underserved
  • International Association of Providers of AIDS Care
  • Florida Cancer Specialists
  • University of Pennsylvania School of Medicine
  • Texas Oncology
  • Allina Health
  • Billings Clinic Specialty Pharmacy
  • Utah Cancer Specialists
  • Luke’s Cancer Center
  • New Mexico Cancer Center
  • Ascension Sacred Heart Cancer Center
  • Tennessee Oncology
  • West Cancer Center
  • Baptist Health
  • Graves Gilbert Clinic
  • Nebraska Hematology Oncology
  • Florida Society of Clinical Oncology

Unfortunately, there have been some setbacks and we wanted to provide an update on the status of our efforts. The Notice of Benefit and Payment Parameters for 2024 was issued recently, and unfortunately, co-pay accumulators were not addressed. In addition, the sponsor of H.R. 5801, Rep. Donald McEachin (D – VA) passed away in late November after a courageous battle with cancer. Because of his passing, the bill is in transition but still has unwavering bipartisan support.

NCODA and PAN continue participation in the All Copays Count Coalition (Home – AllCopaysCount), and we hope that a new bill with sponsors will be introduced as early into the new Congressional session as possible. As we learn more, and developments come from Washington D.C., we will focus our attention on drafting a new sign-on letter. We hope that everyone who signed on previously will do so again, and those that didn’t sign on will consider supporting us in this crucial legislative battle.

Please reach out to Kevin Scorsone, NCODA’s Manager of Patient-Centered Initiatives and Legislative Affairs, at, or Amy Niles, PAN’s Chief Advocacy and Engagement Officer, at should you have any questions and to recommend additional state and national provider organizations that may be interested in supporting our efforts.

Thank you for your support.